In Need Of Diagnosis, Inc.

A 501(c)(3) Nonprofit Organization

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                        Mission
 
INOD’s mission is to provide help and support for individuals distressed with disorders that have eluded medical diagnosis and to identify and encourage the implementation of protocols that will facilitate quicker and more accurate diagnosis.
 

Those suffering with illnesses that defy diagnosis tend to fall through the cracks of the medical system.  They are not reflected in the statistics used to determine what type of medical services there is need for.  Perhaps there is a need for physicians who are Board Certified in “Diagnosis”.  Perhaps a blood test to screen for 40+ metabolic disorders as is now available for newborn infants, needs to be developed for adults.

Individually, those In Need Of Diagnosis are powerless to inspire the development of programs that may help them.  Collectively, their chances are much improved.  INOD seeks to bring persons In Need Of Diagnosis together so they will have a collective identity.  Only then will they be able to make their presence and their needs known to the medical community and to the governmental agencies that decided how and on what public health dollars are spent.

 

WELCOME

 

Thank you for joining us today.  If you are seeking help, please enter the information requested under the heading "Need Help?" on the upper left of this page.  You may also want to become familiar with the information offered by this site by clicking on the various tabs on the upper left.  We would you like to become an INOD supporter?  There is no charge.  You will be supporting INOD's mission and we will have your contact information so we may keep you informed.

  

CONTACT INFORMATION  
Marianne Genetti, Executive Director
PO Box 536456, Orlando, FL 32853-6456
Phone: (407) or (888) 894-9190, Fax: (407) 898-4234
Email: INOD@INOD.org, Web: www.INOD.org

 

In The News...

 

The Undiagnosed Diseases Program at NIH

 

On May 19, 2008, The National Institutes of Health (NIH) created a new program, the Undiagnosed Diseases Program (UDP), to study some of the most difficult-to-dignose medical cases.  The Undiagnosed Diseases Program is an unprecedented trans-NIH clinical initiative that engages a wide range of consulting specialists from the NIH Research Institutes and Centers to evaluate patients who suffer from conditions that have resisted diagnosis.  The web site for that program is http://rarediseases.info.nih.gov/Resources.aspx?PageID=31.  To obtain information on how to apply for that program, call UDP at 866-444-8806.

 

The New York Times had an interesting article about the Undiagnosed Diseases Program.  That can be found at: http://www.nytimes.com/2009/02/22/magazine/22Diseases-t.html?_r=1&pagewanted=print

 

 

Also In The News...

 

IN NEED OF DIAGNOSIS VIDEO (2 MINUTES)

                 

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Disclaimer
 

This website is provided as an information service only. It is not intended to provide medical advice. Every effort has been made to ensure that the information on this website is correct, but In Need Of Diagnosis, Inc. (INOD) does not accept any responsibility for action or omission based on inadvertently incorrect information posted on this website by In Need Of Diagnosis, Inc (INOD) or by support groups.  It is strongly recommended that persons wishing to use information obtained on this website, first consult their medical practitioner.