In Need Of Diagnosis, Inc.

A 501(c)(3) Nonprofit Organization

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DIAGNOSIS is the            
weak link in Medicine
 
Autopsies reveal that 40% of diagnoses are incorrect.  In two-thirds of the cases, medical help could have been available had the diagnosis been correct.
 
NOTE: The above information was excerpted from the Journal of the American Medical Association  (JAMA) article entitled Low Tech Autopsies in the Era of High Tech Medicine  written by then-editor George D. Lundberg, MD., Oct. 14, 1998, - Vol 280, No. 14
 
In Need Of Diagnosis, Inc.'s (INOD) mission is to identify and encourage the implementation of medical protocols that will afford more timely and accurate diagnoses and to provide support to those suffering from disorders that have eluded medical diagnosis.
 
In the United States medical system, diagnosis is not given the priority needed to save unnecessary deaths and reduce the treatment costs of illnesses not found until they are in an advanced stage.  In 2005, the College of American Pathologists (CAP) estimated that of the medical dollars spent, only 3% were spent on diagnosis.
 
The leading cancer killer of both men and women is lung cancer.  Six of ten people diagnosed die within a year.  Between seven and eight die with two years.  Yet of the 15% of the patients diagnosed and treated with Stage 1 cancer there is a 92% rate of survival.  It is not that the technology for early screening is not available. It is rather that routine screening is not done!
 
Parkinson's Diseases was identified In 1838 by James Parkinson, M.D..  Now, more than 180 years later there are still no laboratory tests or scans for diagnosing Parkinsons.
 
Those with rare disorders of which more than 7,000 have been identified, go many years and often die without receiving a diagnosis.  There are no physicians trained and board certified in 'Diagnosis'.  There is no physician whose focus and training is on putting the pieces of a complex medical puzzle together. 
 
Often the primary care physicians (PCP) who refers a complex patient to specialists receives reports to the affect that it is not orthopedic, it is not gastrointestinal, etc. but there is no input as to what it might be. Single test results that may be out of range on a test done by a particular specialist may not, in itself, be significant.  But a diagnostic picture may be revealed when all of the variant test results are looked at together by a master diagnostician.  
 
Though the United States economy is characterized as a free market system, this is not the case with the medical system.  The patient has little say regarding the type of services made available.  This needs to change.  The patient must become a knowledgeable consumer of medical services.  Collectively they can make positive changes.  The public needs to make their interest in the matter of more timely and accurate diagnosis known.  Only then will they be able to influence how public health dollars are spent.
 
Please Read The Following INOD  Articles

"Dr. House! Where are you???"         Dr. House! Where are you???

"Insights Into Undiagnosed Illness"  Insights Into Undiagnosed Illness
 


WELCOME

 

Thank you for joining us today.  If you are seeking help, please enter the information requested under the heading "Need Help?" on the upper left of this page. 

 

CONTACT INFORMATION :  In Need Of Diagnosis, Inc. (INOD), PO Box 536456, Orlando, FL 32853-6456  Phone: (407) or (888) 894-9190, Fax: (407) 898-4234
Email: 
INOD@INOD.org, Web: www.INOD.org

                                            

                                           YOUR SUPPORT IS NEEDED

 

Thanks to the personal commitment of our wonderful board of directors, INOD has made it through its first three years without any thought of asking for payment for what we do.  INOD's organizational needs are minimal.  The Executive Director accepts no payment for her services and INOD's office space and utilities are contributed.  But there are costs for pursuing INOD's mission.  There are people who are in need of diagnosis who contact INOD for help.  There is the need to inform and engage the public in requiring a higher standard for the accuracy and timeliness of diagnosis.  New screening tests need to be identified and action taken to put these into service.  To maximize its effectiveness in these areas, INOD needs financial support – a little “green”.

 

Can you manage $10 or $20 to go towards upgrading computer capabilities?  $30 would buy a cartridge for the printer. Clerical support in the Orlando office can’t depend on volunteers alone.  The telephone bills are high so those in need of diagnosis can call us toll free and talk as long as needed to tell their story.  (Many do not have computers.)

 

Please go to http://inod.org/donations.aspx to make a fully tax-deductible contribution to In Need of Diagnosis, Inc. [INOD]   Note:  We do NOT sell or share your information with any other entity – ever.  

 

 

IN NEED OF DIAGNOSIS VIDEO (2 MINUTES)

                 

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Disclaimer
 

This website is provided as an information service only. It is not intended to provide medical advice. Every effort has been made to ensure that the information on this website is correct, but In Need Of Diagnosis, Inc. (INOD) does not accept any responsibility for action or omission based on inadvertently incorrect information posted on this website by In Need Of Diagnosis, Inc (INOD) or by support groups.  It is strongly recommended that persons wishing to use information obtained on this website, first consult their medical practitioner.