On May 19, 2008, the National Institutes of Health (NIH) created an Undiagnosed Diseases Program (UDP) to study some of the most difficult-to-diagnose medical cases. The Undiagnosed Diseases Program is an unprecedented trans-NIH clinical initiative that engages a wide range of consulting specialists from the NIH Research Institutes and Centers to evaluate patients who suffer from conditions that have resisted diagnosis.
A research program with hopes of discovering variances of both rare and common disorders, the Undiagnosed Diseases Program will also provide hope for many Americans who now struggle with mysterious diseases.
The web site for the UDP is: http://rarediseases.info.nih.gov/Resources.aspx?PageID=31
There was a very interesting article in the New York Times Magazine about the Undiagnosed Disorders Program. That article can be found at: http://www.nytimes.com/2009/02/22'magazine/22Diseases-t,html?_r=1&pagewanted=print
Information for Referring Health-Care Providers
Information for Undiagnosed Patient